MetamorFit

Jenny Hodges. Tampa Librarian. Book Lover. Slow Runner. Mom to Irish Triplets. Living and Traveling in the Autism World.



 

6. April 2014 08:34
by jennifer
9 Comments

AMRAP for RONIN-A WOD for Autism

6. April 2014 08:34 by jennifer | 9 Comments

My son Ronin has autism. It was a very long winding road to get his diagnosis. A road that we started on when he was 15 months old. By the age of 3 he was diagnosed with early on-set rapid cycling bi-polar disorder, as well as a host of other "ABC" disorders. That's what I call the disorders that have acronyms.

But low and behold, when Ronin was 6, the bi-polar condition was removed and his PDD-NOS was removed and because of the new DSM-5 Diagnostic Criteria for Autism, he was formally diagnosed with ASD Level 2. Level 2 states:

"Inflexibility of behavior, difficulty coping with change, or other restricted/repetitive behaviors appear frequently enough to be obvious to the casual observer and interfere with functioning in  a variety of contexts. Distress and/or difficulty changing focus or action."

And that pretty much sums up my amazing son. And gosh, he is so amazing. Here he is just a few hours after his birth at home.

Last year we participated in our first ever Autism Speaks Walk, as part of team Laps for Logan, Running for Ronin. I think I was able to raise $250 in donations.

But this year, I have my sights set on bringing more funds and more awareness to Autism.

My amazing box, CrossFit En Fuego will be hosting an AMRAP for RONIN, a 30 minute WOD for Autism designed to kick your butt. I want to keep the details of the WOD a secret, but know that it will be a PARTNER WOD and there will be 5 exercises you will do and each movement has a letter of Ronin's name in it Tongue Out AND....it will be a WOD EVERYONE can do, even if you are not a CrossFitter!!

 

The WOD is FREE, but we will be accepting donations, with 100% of all donations going directly to Autism Speaks-Tampa Bay. Each $5 donation will give you one raffle ticket and I'm having some great prizes, including:

And more!!

I hope that you are able to make it to CrossFit En Fuego on April 12, at 9am! You can RSVP here:

https://www.facebook.com/events/306043032882065/

And if you can't make it, but would still like to donate to our fundraising page, you can do that here

Thank you for your support!!

HAVE YOU EVER DONE A WORKOUT FOR CHARITY??

Comments (9) -

Maria

What a great organization! Keep us informed on the event and how your area did. Good luck!

Kathleen Kennedy-Leon

Good luck with this event--hope it raises lots of funds and awareness!  And yes I've done a rUNDEAD Zombie run for Special Olympics.  

susan

I wish you luck with this event, it is a great cause and I hope you get all you need. This is a wonderful organization.

OurFamilyWorld

This is such a great event. I once did a walk for March of Dimes. It was fun!

Mama to 5 Blessings

Thank you for sharing and educating your readers. I hope you are able to reach your goal, thank you!

Melissa Vera

what a great way to show your support to your son. I think more parents need to get  involved.

Kimberly

Jenny,

I felt like I should say something regarding this post, but I just wasn't so sure as to what until the other day. I'm sorry that I'm delayed in my writing. Obviously, you know that Logan also has Autism, and when I started talking about it, it was because I realized, just because this label (And many others - much like Ronin) follow his name, it doesn't define who he is or what he can do. I knew my son, and I know Ronin, are both meant for great things!

The hardest day of my life was realizing that Logan needed medication to get through day to day activities. It's something to this day that I struggle with on a daily basis. It's not so much the Autism Medication that worries me, that's minimal (As your Husband pointed out) it's his seizure medication that makes me want to cry. We increased his dose today because of a grand mal last night. When I walked in, for the second time of his life, I saw him seizing and I thought he was dead.

I think that's what advocating is all about. Understanding that your child has these conditions, but not making an excuse for them- just creating awareness. I have been in your shoes - I know the stares you get at the grocery store, the 'bad parenting' judgement glances, and the overall heartache that you feel on diagnosis day. I've also been on the other side with you, watching them meet goals, succeed, and ultimately, watching our boys hang out together! (They truly are the cutest!) Advocating and Educating is okay. Helping create awareness and helping other parents understand they're not alone is great Smile (Obviously in my opinion).

The Autism never scared me, the Epilepsy does. I chose to speak out about the Autism because we got those nasty glares, the difficult questions, the "Bad parenting" Judgements, and I said enough is enough. It's not any of those things. Autism is real, it's hard, it takes some time and understanding - but in no way shape or form is one of my boys treated differently from the others Smile I can say that because I have 3 sons. I think in your case you have two girls and Ro Smile

John Elder Robinson is my favorite "Person on the Spectrum", Jim Parsons, another class act, also on the spectrum. These men are both vocal about their conditions and are successful in spite and despite of their ASD. I completely agree with James when he says try to medicate minimally, teach coping skills and mechanisms (My son chooses to lick people - sorry in advance!), and that is is imperative that everyone treat our sons equally, like everyone else. The only special treatment Lo receives is medical treatment when he needs to be seen for his conditions.

Kerry Mago (SP) Is an Autism Speaks writer - and is the first person to say that Autism doesn't define our children. None of those ABC XYZ labels do.

Your event sounded amazing and I'm so sad I wasn't able to attend. I think it's great you are able to share your story - just like with weight loss- this is just one more thing that will inspire others! Your family is awesome - all of you Smile And I can totally see where your husband is coming from too! I really do. I'm sure mine feels the same way. I was so sad when Logan was diagnosed, and now I'm just glad that I can help people understand they are not alone- and we can rejoice as a family when Logan meets a goal or a milestone Smile



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